Combining Digital Storytelling and Health Coaching in Chronic Disease Management: A Scoping Review
Abstract
Chronic diseases such as diabetes, hypertension, and cardiovascular conditions require ongoing and holistic management. Digital storytelling and health coaching are innovative methods that support chronic disease management. Digital storytelling enables patients to share personal experiences, enhancing their understanding and engagement. Health coaching offers personalized support to help patients achieve health goals through sustainable lifestyle changes. This scoping review aims to examine the existing literature on the use of digital storytelling and health coaching in chronic disease management. The review focuses on the potential benefits of combining these approaches and identifying research gaps. A literature search was conducted across electronic databases (PubMed, Scopus, Google Scholar) using keywords related to digital storytelling, health coaching, and chronic disease management. Studies meeting the inclusion criteria were analyzed to identify key themes and research gaps. The findings indicate that digital storytelling enhances patient understanding of their condition, promotes better communication with healthcare providers, and increases patient engagement. Health coaching effectively helps patients set and achieve health goals through a structured and personalized approach. The combination of these methods provides a more holistic approach to chronic disease management. Integrating digital storytelling and health coaching provides a personalized, empathetic, and coordinated method for addressing chronic illnesses. However, further research is required to enhance integration strategies and evaluate the sustained impact of these methods across different long-term health conditions.
References
Alencar, M., Johnson, K., Gray, V., Mullur, R., Gutierrez, E., & Dionico, P. (2020). Telehealth-based health coaching increases m-health device adherence and rate of weight loss in obese participants. Telemedicine and E-Health, 26(3), 365–368.
Andreae, S. J., Andreae, L. J., Cherrington, A. L., Richman, J. S., Johnson, E., Clark, D., & Safford, M. M. (2021). Peer coach delivered storytelling program improved diabetes medication adherence: A cluster randomized trial. Contemporary Clinical Trials, 106358. Retrieved from https://api.semanticscholar.org/CorpusID:232303048
Andreae, S. J., Andreae, L. J., Cherrington, A., Richman, J., & Safford, M. (2020). Peer coach delivered storytelling program for diabetes medication adherence: Intervention development and process outcomes. Contemporary Clinical Trials Communications, 20, 100653. https://doi.org/10.1016/j.conctc.2020.100653
Azelton, K. R., Crowley, A. P., Vence, N., Underwood, K., Morris, G., Kelly, J., & Landry, M. J. (2021a). Digital health coaching for type 2 diabetes: randomized controlled trial of healthy at home. Frontiers in Digital Health, 3, 764735.
Azelton, K. R., Crowley, A. P., Vence, N., Underwood, K., Morris, G., Kelly, J., & Landry, M. J. (2021b). Digital Health Coaching for Type 2 Diabetes: Randomized Controlled Trial of Healthy at Home. Frontiers in Digital Health, 3(November), 1–11. https://doi.org/10.3389/fdgth.2021.764735
Bailey, J. F., Agarwal, V., Zheng, P., Smuck, M., Fredericson, M., Kennedy, D. J., & Krauss, J. (2020). Digital care for chronic musculoskeletal pain: 10,000 participant longitudinal cohort study. Journal of Medical Internet Research, 22(5), e18250.
Benzo, R. P., Ridgeway, J., Hoult, J. P., Novotny, P., Thomas, B. E., Lam, N. M., … Seifert, S. (2021). Feasibility of a health coaching and home-based rehabilitation intervention with remote monitoring for COPD. Respiratory Care, 66(6), 960–971.
BERA. (2011). British Educational Research Association-BERA. British Educational Research Association. Retrieved from http://www.bera.ac.uk/publications
Carlson, L. M., Ridgeway, J. L., Asiedu, G. B., Wieland, M. L., Sia, I. G., Capetillo, G. D. P., … Njeru, J. W. (2020). Facilitated Stories for Change: Digital Storytelling as a Tool for Engagement in Facilitated Discussion for Reduction of Diabetes-Related Health Disparities Among Rural Latino Patients With Diabetes. Journal of Transcultural Nursing, 32, 707–715. Retrieved from https://api.semanticscholar.org/CorpusID:229353661
Carlson, L. M., Ridgeway, J. L., Asiedu, G. B., Wieland, M. L., Sia, I. G., Porraz Capetillo, G., … Njeru, J. W. (2021). Facilitated stories for change: digital storytelling as a tool for engagement in facilitated discussion for reduction of diabetes-related health disparities among rural Latino patients with diabetes. Journal of Transcultural Nursing, 32(6), 707–715.
Charon, R., & Marcus, E. R. (2016, October 1). 271A Narrative Transformation of Health and Healthcare. (R. Charon, S. DasGupta, N. Hermann, C. Irvine, E. R. Marcus, E. Rivera Colsn, … M. Spiegel, Eds.), The Principles and Practice of Narrative Medicine. Oxford University Press. https://doi.org/10.1093/med/9780199360192.003.0013
Fotis, D. T., Kioskli, K., Sundaralingam, A., Fasihi, A., & Mouratidis, H. (2023). Co-creation in a digital health living lab: A case study. Frontiers in Public Health, 10, 892930. https://doi.org/10.3389/fpubh.2022.892930
Giravi, H. Y., Biskupiak, Z., Tyler, L. S., & Bulaj, G. (2022). Adjunct digital interventions improve opioid-based pain management: impact of virtual reality and mobile applications on patient-centered pharmacy care. Frontiers in Digital Health, 4, 884047.
Gong, E., Baptista, S., Russell, A., Scuffham, P., Riddell, M., Speight, J., … Oldenburg, B. (2020). My diabetes coach, a mobile app–based interactive conversational agent to support type 2 diabetes self-management: randomized effectiveness-implementation trial. Journal of Medical Internet Research, 22(11), e20322.
Haigh, C., & Hardy, P. (2011). Tell me a story--a conceptual exploration of storytelling in healthcare education. Nurse Education Today, 31(4), 408–411. https://doi.org/10.1016/j.nedt.2010.08.001
Kang, E. K., Park, S. M., Lee, K., Lee, E. B., Yim, J. J., Lee, J., … Yun, Y. H. (2021). Efficacy of Health Coaching and an Electronic Health Management Program: Randomized Controlled Trial. Journal of General Internal Medicine, 36(9), 2692–2699. https://doi.org/10.1007/s11606-021-06671-2
Kang, E., Park, S. M., Lee, K., Lee, E. B., Yim, J.-J., Lee, J., … Yun, Y. H. (2021). Efficacy of health coaching and an electronic health management program: randomized controlled trial. Journal of General Internal Medicine, 36, 2692–2699.
Khusial, R. J., Honkoop, P. J., Usmani, O., Soares, M., Simpson, A., Biddiscombe, M., … Polychronidou, E. (2020). Effectiveness of myAirCoach: a mHealth self-management system in asthma. The Journal of Allergy and Clinical Immunology: In Practice, 8(6), 1972–1979.
Kivelä, K., Elo, S., Kyngäs, H., & Kääriäinen, M. (2014). The effects of health coaching on adult patients with chronic diseases: a systematic review. Patient Education and Counseling, 97(2), 147–157. https://doi.org/10.1016/j.pec.2014.07.026
Lewinski, A. A., Walsh, C., Rushton, S., Soliman, D., Carlson, S. M., Luedke, M. W., … Sharpe, J. A. (2022). Telehealth for the longitudinal management of chronic conditions: systematic review. Journal of Medical Internet Research, 24(8), e37100.
Lohr, A. M., Vickery, K. D., Hernandez, V., Ford, B. R., Gonzalez, C., Kavistan, S., … Sia, I. G. (2023). Stories for change protocol: A randomized controlled trial of a digital storytelling intervention for Hispanic/Latino individuals with type 2 diabetes. Contemporary Clinical Trials, 107093. Retrieved from https://api.semanticscholar.org/CorpusID:256104544
Lohr, A., Raygoza, J., Valdez, E., Hassett, L., Gubrium, A., Fiddian-Green, A., … Wieland, M. (2022). The use of digital stories as a health promotion intervention: a scoping review. BMC Public Health, 22. https://doi.org/10.1186/s12889-022-13595-x
Lupton, D. (2013). The digitally engaged patient: Self-monitoring and self-care in the digital health era. Social Theory and Health, 11(3), 256–270. https://doi.org/10.1057/sth.2013.10
Pamungkas, R. A., Usman, A. M., & Chamroonsawasdi, K. (2022). A smartphone application of diabetes coaching intervention to prevent the onset of complications and to improve diabetes self-management: A randomized control trial. Diabetes & Metabolic Syndrome: Clinical Research & Reviews, 16(7), 102537.
Peters, M. D., Godfrey, C. M., McInerney, P., Soares, C. B., Khalil, H., & Parker, D. (2015). The Joanna Briggs Institute Reviewers’. Manual 2015: Methodology for JBI scoping reviews. Joanne Briggs Institute, 1–24. https://doi.org/10.1017/CBO9781107415324.004
Peters, M., Godfrey, C., Khalil, H., Mcinerney, P., Soares, C., & Parker, D. (2017). 2017 Guidance for the Conduct of JBI Scoping Reviews.
Shahil Feroz, A., Afzal, N., & Seto, E. (2022). Exploring digital health interventions for pregnant women at high risk for pre-eclampsia and eclampsia in low-income and-middle-income countries: a scoping review. BMJ Open, 12(2), e056130. https://doi.org/10.1136/bmjopen-2021-056130
Shakeri Hossein Abad, Z., Kline, A., Sultana, M., Noaeen, M., Nurmambetova, E., Lucini, F., … Lee, J. (2021a). Digital public health surveillance: a systematic scoping review. NPJ Digital Medicine, 4(1), 41.
Shakeri Hossein Abad, Z., Kline, A., Sultana, M., Noaeen, M., Nurmambetova, E., Lucini, F., … Lee, J. (2021b). Digital public health surveillance: a systematic scoping review. Npj Digital Medicine, 4(1). https://doi.org/10.1038/s41746-021-00407-6
Sherifali, D., Brozic, A., Agema, P., Punthakee, Z., McInnes, N., O’Reilly, D., … Gerstein, H. C. (2021). Effect of diabetes health coaching on glycemic control and quality of life in adults living with type 2 diabetes: a community-based, randomized, controlled trial. Canadian Journal of Diabetes, 45(7), 594–600.
Sulfikar, A., & Rajab, M. A. (2024). Evaluation of the feasibility of digital health applications based on best practice guidelines for diabetes management: A scoping review. Informatics in Medicine Unlocked, 51(19), 101601. https://doi.org/10.1016/j.imu.2024.101601
Thom, D. H., Willard-Grace, R., Tsao, S., Hessler, D., Huang, B., DeVore, D., … Su, G. (2018). Randomized Controlled Trial of Health Coaching for Vulnerable Patients with Chronic Obstructive Pulmonary Disease. Annals of the American Thoracic Society, 15(10), 1159–1168. https://doi.org/10.1513/AnnalsATS.201806-365OC
Tran, C., Dicker, A., Leiby, B., Gressen, E., Williams, N., & Jim, H. (2020). Utilizing digital health to collect electronic patient-reported outcomes in prostate cancer: single-arm pilot trial. Journal of Medical Internet Research, 22(3), e12689.
Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., … Straus, S. E. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850
Willard-Grace, R., Chirinos, C., Wolf, J., DeVore, D., Huang, B., Hessler, D., … Thom, D. H. (2020). Lay health coaching to increase appropriate inhaler use in COPD: a randomized controlled trial. The Annals of Family Medicine, 18(1), 5–14.
World Health Organisation. (2022). Noncommunicable diseases. World Health Organisation, (March 29).
Yun, Y. H., Lim, C. Il, Lee, E. S., Kim, Y. T., Shin, K. H., Kim, Y., … Han, W. (2020). Efficacy of health coaching and a web‐based program on physical activity, weight, and distress management among cancer survivors: a multi‐centered randomised controlled trial. Psycho‐Oncology, 29(7), 1105–1114.
Zarifsaniey, N., Shirazi, M. O., Mehrabi, M., & Bagheri, Z. (2022). Promoting self-management behaviors in adolescents with type 1 diabetes, using digital storytelling: a pilot randomized controlled trial. BMC Endocrine Disorders, 22(1), 74.
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