The Overview of Caregiver Burden in Families with Hemodialysis Patient

  • Nada Salsabila Faculty of Nursing, Universitas Padjadjaran
  • Sri Hartati Pratiwi Faculty of Nursing, Universitas Padjadjaran
  • Etika Emaliyawati Faculty of Nursing, Universitas Padjadjaran
Keywords: caregiver burden, family caregiver, haemodialysis

Abstract

Chronic renal failure patients undergoing haemodialysis therapy experience various conditions and require long-term care which can cause a burden on the families who care for patients. This family caregiver burden can affect the quality of life of both patients and family caregivers, and also affect the care provided to patients. The purpose of the study was to determine the description of caregiver burden in families with haemodialysis patients. This study is a quantitative descriptive study and the sample was taken using purposive sampling technique (n = 107) with the inclusion criteria of respondents as the main caregiver with family members undergoing haemodialysis therapy at RSUD Sumedang, and physically and mentally healthy. Exclusion criteria in the study were potential respondents who refused to participate and respondents who decided to stop in the middle of the study. The burden of caregivers on the family was measured using the Burden Scale for Family Caregivers Short Scale (BSFC-s) questionnaire with test results, namely r results (0.634) > r table (0.786) as well as Cronbach alpha value of 0.900 which means this questionnaire is valid and reliable. The picture of caregiver burden shows that almost half of family caregivers are in the high category (49.5%) and most experience heavy burden in the physical dimension. The results of this study are expected to be used as a reference for learning and evaluation for nurses, family caregivers, and educational institutions to be able to carry out effective interventions that can be carried out to reduce the burden of care experienced by family caregivers.

References

Adha, H. (2020). Beban Family Caregiver Pasien Paliatif Di Rumah Teduh Sahabat Iin Bandung. Universitas Padjadjaran.

Adianta, I. K. A., & Wardianti, G. A. (2018). Beban Keluarga Pada Penderita Diabetes Melitus Tipe II. Jurnal Riset Keperawatan.

Andrén, S., & Elmståhl, S. (2007). Relationships between income, subjective health and caregiver burden in caregivers of people with dementia in group living care: A cross-sectional community-based study. International Journal of Nursing Studies, 44(3), 435–446. https://doi.org/10.1016/j.ijnurstu.2006.08.016

Arikunto, S. (2013). Prosedur Penelitian Suatu Pendekatan Praktik. PT. Rineka Cipta.

Ariska, Y. N., Handayani, P. A., & Hartati, E. (2020). Faktor yang Berhubungan dengan Beban Caregiver dalam Merawat Keluarga yang Mengalami Stroke. Holistic Nursing and Health Science.

Aruan, T. N. R., & Sari, S. P. (2018). Gambaran Beban Ibu Sebagai Caregiver Anak Dengan Skizofrenia Di Poliklinik Rawat Jalan Rumah Sakit Jiwa. Repository Universitas Diponegoro.

Darwin, P., Hadisukanto, G., & Elvira, S. D. (2013). Beban Perawatan dan Ekspresi Emosi pada Pramurawat Pasien Skizofrenia di Rumah Sakit Jiwa. Journal of the Indonesian Medical Association.

Diniz, M. A. A., Melo, B. R. de S., Neri, K. H., Casemiro, F. G., Figueiredo, L. C., Gaioli, C. C. L. de O., & Gratão, A. C. M. (2018). Comparative study between formal and informal caregivers of older adults. Ciência & Saúde Coletiva, 23(11), 3789–3798. https://doi.org/10.1590/1413-812320182311.16932016

Effendy, C., Vernooij‐Dassen, M., Setiyarini, S., Kristanti, M. S., Tejawinata, S., Vissers, K., & Engels, Y. (2015). Family caregivers’ involvement in caring for a hospitalized patient with cancer and their quality of life in a country with strong family bonds. Psycho-Oncology, 24(5), 585–591. https://doi.org/10.1002/pon.3701

Farzi, S., Farzi, S., Moladoost, A., Ehsani, M., Shahriari, M., & Moieni, M. (2019). Caring Burden and Quality of Life of Family Caregivers in Patients Undergoing Hemodialysis: A Descriptive-Analytic Study. International Journal of Community Based Nursing and Midwifery, 7(2), 88–96. https://doi.org/10.30476/IJCBNM.2019.44888

Febriani, H. (2021). Hubungan Lama Menjalani Hemodialisis dengan Self Care di Rumah Sakit Islam Sultan Agung Semarang. Univeristas Islam Sultan Agung.

Friedman. (2015). Friedman, M. 2010. Buku Ajar Keperawatan keluarga : Riset, Teori, dan Praktek. Edisi ke-5. Jakarta: EGC. Galang Tanjung.

Fund, A. K. (2020). Kidney Failure (ESRD) Causes, Symptomps, & Treatments. American Kidney Fund.

Graessel, E., Berth, H., Lichte, T., & Grau, H. (2014). Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s. BMC Geriatrics, 14(1), 23. https://doi.org/10.1186/1471-2318-14-23

Havilah, V. R. (2021). Hubungan Antara Kualitas Hidup Dan Beban Pengasuhan Pada Generasi Sandwich. Universitas Islam Indonesia. https://dspace.uii.ac.id/handle/123456789/34537?show=full

Institute, J. B. (2012). Caregiver burden of terminally‐ill adults in the home setting. Nursing & Health Sciences, 14(4), 435–437. https://doi.org/10.1111/nhs.12013

Kamalah, A. D., Ahsan, & Kristianto, H. (2020). Efektivitas Psikoedukasi Keluarga Dalam Menurunkan Beban Keluarga Pada Keluarga Pasien Ulkus Diabetes Melitus. Jurnal Ilmu Keperawatan Jiwa.

Kartika, P., Nauli, F. A., & Rustam, M. (2023). Hubungan antara Beban dan Kualitas Hidup Caregiver Penderita Skizofrenia. Jurnal Vokasi Keperawatan. https://ejournal.unib.ac.id/JurnalVokasiKeperawatan/article/download/26076/12810

Kemenkes. (2017). Ginjal Kronis - Penyakit Tidak Menular Indonesia. https://p2ptm.kemkes.go.id/kegiatan-p2ptm/subdit-penyakit-jantung-dan-pembuluh-darah/ginjal-kronis

Maulidya, D. R. (2022). Gambaran Beban Caregiver Keluarga Orang Dengan Gangguan Jiwa (ODGJ). Universitas Diponegoro.

Menati, L., Torabi, Y., Andayeshgar, B., & Khatony, A. (2020). The Relationship Between Care Burden and Coping Strategies in Caregivers of Hemodialysis Patients in Kermanshah, Iran. Psychology Research and Behavior Management, Volume 13, 133–140. https://doi.org/10.2147/PRBM.S233103

Nugroho, F. A., Sabarini, Y. G., & Sawiji. (2019). Tingkatan Beban Family Caregiver pada Pasien Gagal Ginjal Kronik yang Menjalani Terapi Hemodialisa. University Research Colloquium.

Nurcahyati, S., & Karim, D. (2016). Implementasi Self Care Model dalam Upaya Meningkatkan Kualitas Hidup Penderita Gagal Ginjal Kronik. Jurnal Keperawatan Sriwijaya, 3. https://ejournal.unsri.ac.id/index.php/jk_sriwijaya/article/view/4239

Puspitasari, S. (2017). Gambaran Beban Caregiver Keluarga Pada Pasien Kanker Di Rumah Singgah Yayasan Kanker. https://repository.uinjkt.ac.id/dspace/bitstream/123456789/36745/1/Santi Puspitasari-FKIK.pdf

Rahma, S. F. A. (2017). Hubungan Kepatuhan Pembatasan Cairan Terhadap Terjadinya Hipervolemia pada Pasien Gagal Ginjal Kronik di Ruang Hemodialisa RSUD Dr. Harjono Ponorogo.

Ratnawati, D. M., Husada, M. S., & Loebis, B. (2014). Relationship of Burden with Characteristic Sociodemographic Caregiver in Schizophrenic patients. Journal of Biology, Agriculture and Healthcare, 4. https://core.ac.uk/download/pdf/234660171.pdf

Riskesdas. (2018). Hasil Utama Riskesdas 2018. KEMENKES RI. www.depkes.go.id

Rizka, Y., Erwin, Hasneli, Y., & Putriana, N. (2021). Beban Family Caregiver Dalam Merawat Pasien Kanker Stadium Lanjut. Jurnal Ners Indonesia, 12.

Setiati, S., Alwi, I., Sudoyo, A. W., Simadibrata, M., Setiyohadi, B., & Syam, A. F. (2014). Buku Ajar: Ilmu Penyakit Dalam (Fourth Ed). InternaPublishing.

Shakya, D. (2017). Burden and Depression among Caregivers of Hemodialysis Patients. Palliative Medicine & Care: Open Access, 4(1), 1–6. https://doi.org/10.15226/2374-8362/4/1/00131

Sharma, N., Chakrabarti, S., & Grover, S. (2016). Gender differences in caregiving among family - caregivers of people with mental illnesses. World Journal of Psychiatry, 6(1), 7. https://doi.org/10.5498/wjp.v6.i1.7

Stuart, G. W. (2016). Principles and Practice of Psychiatric Nursing (Keperawatan Kesehatan Jiwa 7 th Ed). Singapore: ELSEVIER.

Tjokroprawiro, A. (2015). Buku ajar ilmu penyakit dalam. Surabaya FK Unair 2015.

Utami, R., Yasin, Z., & Sulistiorini, I. (2015). Hubungan Dukungan Keluarga Dengan Motivasi Ibu Dalam Mendapatkan Imunisasi Dasar Lengkap Pada Bayi Usia 0-12 Bulan Di Desa Nyabakan Barat. Jurnal Kesehatan Wiraraja Medika.

Werdani, Y. D. W. (2022). Length of caring duration increases burden and reduces health status of cancer patients’ family caregivers in Surabaya, Indonesia. Public Health and Preventive Medicine Archive, 8(1). https://doi.org/10.53638/phpma.2020.v8.i1.p09

Wulandari, P. A., & Fitriani, D. R. (2019). Hubungan Beban dengan Penerimaan Keluarga pada ODGJ di Poliklinik RSJD Atma Husada Mahakam Samarinda. Borneo Student Research.

Published
2024-05-19
How to Cite
Salsabila, N., Pratiwi, S. H., & Emaliyawati, E. (2024). The Overview of Caregiver Burden in Families with Hemodialysis Patient. Indonesian Journal of Global Health Research, 6(3), 1355-1366. https://doi.org/10.37287/ijghr.v6i3.3199