Feeling as A Bullying Victim” Perceptions of Adolescent Female with Thalassemia Major: A Qualitative Study

  • Nanda Sartika Sekolah Tinggi Ilmu Kesehatan Raflesia
  • Allenidekania Allenidekania Faculty of Nursing, Universitas Indonesia
  • Nani Nurhaeni Faculty of Nursing, Universitas Indonesia
Keywords: adolescents female, bullying victim, thalassemia major, woman roles

Abstract

Adolescent female with thalassemia major disease experience various psychological, emotional, and social behavioral problems that affect their perceptions of being a woman in the future. The purpose of this study was to explore the perceptions of female teenagers with thalassemia major about being woman. This study uses a descriptive phenomenological approach. The method used was in-depth interviews using semi-structured interview guidelines, and data was analyzed using the Colaizzi method. There were 12 participants selected using a purposive sampling technique. The results was based on the theme, fear of ill- treatment, with the sub-themes, fear of bullying from friends and fear of physical violence from men. Adolescent female with thalassemia major in this study experienced bullying both verbally and physically. Verbally, adolescents receive various kinds of negative labels that are often said by their friends. Three teenagers in this study received physical abuse (physical violence) from their friends and their father. Adolescents with this disease experience fear and worry about their future as women, especially with the experience of treatment from those around them.

References

Az-zahra, W, F., Mardhiyah, Ai., Nurhidayah, Ikeu. (2019). The depression categories of adolescents with beta-thalasemia major. Jurnal of Nursing Care, 2(1), http://journal.unpad.ac.id/jnc/article/view/20162

Behdani, F., Badiee, Z., Hebrani, P., Moharreri, F., Badiee, A. H., Hajivosugh, N., … Akhavanrezayat, A. (2015). Psychological aspects in children and adolescents with major thalassemia: A case-control study. Iranian Journal of Pediatrics, 25(3), 0–8. https://doi.org/10.5812/ijp.25(3)2015.322

Hassan, S. M. E., & Azzab, S. E. S. H. I. El. (2016). Study of the Health Instructions Effect on Quality of Life and Psychological Problems among Children with Thalassemia. International Journal of Studies in Nursing, 1(1), 16. https://doi.org/10.20849/ijsn.v1i1.92

Hatta, M. (2018). Tindakan perundungan (bullying) dalam dunia pendidikan ditinjau berdasarkan hukum pidana Islam. MIQOT: Jurnal Ilmu-Ilmu Keislaman, 41(2), 280–301. https://doi.org/10.30821/miqot.v41i2.488

IDAI. (2016). Mengenal thalasemia. https://www.idai.or.id/artikel/seputar-kesehatan-anak/mengenal-thalasemia.

Kementerian Kesehatan Republik Indonesia. Pedoman nasional pelayanan kedokteran tata laksana thalasemia. , 15 Director § (2018).

Lippi, G., & Mattiuzzi, C. (2020). Updated Worldwide Epidemiology of Inherited Erythrocyte Disorders. Acta Haematologica, 143(3), 196-203. https://doi.org/10.1159/000502434

Mariana, D., Ruistina, Y., & Nasution, Y. (2014). Analisis faktor yang memengaruhi kualitas hidup anak thalassemia beta mayor. Jurnal Keperawatan Indonesia, 17(1), 1-10.

Mohamadian, F., Bagheri, M., Hashemi, M. S., & Komeili Sani, H. (2018). The Effects of Cognitive Behavioral Therapy on Depression and Anxiety among Patients with Thalassemia: a Randomized Controlled Trial. Journal of Caring Sciences, 7(4), 219–224. https://doi.org/10.15171/jcs.2018.033

Mufti, G., Towell, T., & Cartwright, T. (2014). Pakistani Children ’ s Experiences of Growing Up With Beta-Thalassemia Major. Journal Permissions. https://doi.org/10.1177/1049732314552663

Nurhidayah, Ikeu., Hendrawati, Sri., Mediani, H.S, & Adistie, Fanny. (2016). Kualitas hidup pada anak dengan kanker. Jurnal Keperawatan Universitas Padjajaran, 4(1), http://jkp.fkep.unpad.ac.id/index.php/jkp/article/view/136

Nurvitasari, J., Mardhiyah, A., & Nurhidayah, I. (2019). Masalah psikososial pada penyandang talasemia usia sekolah di poliklinik thalasemia RSUD Sumedang. Jurnal Keperawatan Komprehensif, 5(1), 55. https://doi.org/10.33755/jkk.v5i1.129

Setyawan, Davit. (2016). KPAI: Presiden Jokowi siapkan Perpres terkait bullying terhadap anak. http://www.kpai.go.id/berita/kpai-presiden-jokowi-siapkan-perpres-terkait-bullyingterhadap-anak

Wahidiyat, P. A., Sari, T. T., Rahmartani , L. D., Iskandar, S. D., Pranata, A. M., Yapiy, I., Setianingsih, I., Atmakusuma, T. D., & Lubis, A. M. (2022). Thalassemia in Indonesia. Hemoglobin, 46(1), 39-44. https://doi.org/10.1080/03630269.2021.2023565

Yacobovich, J., & Tamary, H. (2014). Thalassemia major and sickle cell disease in adolescents and young adults. Acta Haematologica, 132(3–4), 340–347. https://doi.org/10.1159/000360235

Zakiyah, E. Z., Humaedi, S., & Santoso, M. B. (2017). Faktor yang mempengaruhi remaja dalam melakukan bullying. Prosiding Penelitian Dan Pengabdian Kepada Masyarakat, 4(2), 324–330. https://doi.org/10.24198/jppm.v4i2.14352

Published
2023-09-28
How to Cite
Sartika, N., Allenidekania, A., & Nurhaeni, N. (2023). Feeling as A Bullying Victim” Perceptions of Adolescent Female with Thalassemia Major: A Qualitative Study. Indonesian Journal of Global Health Research, 5(4), 601-608. https://doi.org/10.37287/ijghr.v5i4.2251